Sophie’s Voice Foundation

As of 2019 Sophie’s Voice Foundation is the Kodjoe Family Foundation

Click here to go to the Kodjoe Foundation Website

“70% of the cases of Spina Bifida could be prevented by taking Folic acid. But the number of cases have gone through the roof lately, because of a lack of nutritional responsibility.”
Boris Kodjoe
“We are extremely excited and motivated to be a voice for those unheard, and to provide education about prevention and a possible cure for this most preventable birth defect.”
Nicole Ari Parker

Protecting Their Life Before It Begins

Mission and Background

Sophie’s Voice Foundation was founded in 2008 by actors Boris Kodjoe and Nicole Ari Parker in honor of their daughter Sophie who was diagnosed with Spina Bifida at birth. By dedicating themselves to a healthy lifestyle they found ways to address not only their daughters mental, physical and medical needs but also the needs of their entire family. Boris and Nicole have committed their resources and celebrity to educating multicultural communities worldwide on the importance of families working together to build healthy lifestyle habits one day at a time.

In December 2011, SVF established The Center for Spina Bifida Research, Prevention and Policy (CSB) at Emory University in Atlanta. Children’s Healthcare of Atlanta, Emory School of Medicine and the Rollins School of Public Health at Emory are also founding partners for this center, which seeks to provide national and international leadership in healthcare for individuals with spina bifida. CSB initiatives include the total global prevention of folic acid-preventable spina bifida and the transition for children from pediatric healthcare into accessible adult healthcare.

Nicole and Boris are extremely excited and motivated to be a voice for those unheard and to provide education about prevention and a possible cure for this most preventable birth defect.

As our children got older and grew more and more interested in some of our initiatives and projects, we decided to expand the work of the Foundation to accommodate some of Sophie and Nicolas’ social and cultural activism interests. As of June 2019 we have changed the name to the Kodjoe Family Foundation.

National Advocacy

Sophie’s Voice Foundation met with several offices of the Obama Administration, including Health Reform, the Secretary of Health and Human Services, Public Liaison, Secretary of Commerce and the CDC.

SVF advocates for children and adults with spina bifida and proposed a $200 million annual budget allocation to be given to CDC for worldwide birth defects initiatives and programs.

Family Support

The SVF helps Spina Bifida Families by providing medical, physical, and emotional support where needed. We are a community of people who come together to talk and listen, educate and learn, and find solutions to everyday issues.

Prevention and Education

Research has shown that 400 mcg of folic acid taken daily prior to conception and in the first three months of pregnancy can reduce the risk of having a baby with Spina Bifida by as much as 70%. The SVF organizes tours across America’s High Schools and Colleges to educate young girls about their responsibility to add folic acid to their diet.


Make a donation to Sophie’s Voice Foundation today! With your financial support, you add your voice to help raise public awareness of spina bifida and its prevention – and you are helping to prevent needless birth incidences of a preventable birth defect.

Research and Prevention

The Rollins School of Public Health at Emory University (RSPH), Sophie’s Voice Foundation (SVF), and Emory University School of Medicine Department of Pediatrics announced today the establishment of The Center for Spina Bifida Research, Prevention and Policy (CSB). The primary goal of the Center will be the total, global prevention of folic-acid preventable spina bifida over the next 10 years. The Center will also create programs to help advance the quality of life for individuals living with spina bifida, including individuals transitioning from pediatric to adult care.

Help Us Make a Difference

Currently, SOPHIE’S VOICE FOUNDATION is planning and hosting fundraisers across the nation to provide $2 million seed funding for a national The Center for Spina Bifida Research, Prevention and Policy.

Make a donation today to help us reach our goal to advance the care and quality of life for children and adults living with spina bifida!

If you would like to contact Sophie’s Voice Foundation for more information about our programs or initiatives for the spina bifida community, the following is our contact information:

Sophie’s Voice Foundation
10403 Leslie Street
Silver Spring, MD  20902
Telephone: (651) 335-3988