Sophie’s Voice Foundation

Sophie’s Voice Foundation supports Global Health and Wellness Initiatives in multicultural communities

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SVF Family Fun!

Join us in the campaign to bring back the FUN in family. The cost of raising a child with Spina Bifida is 13 times the cost of raising a child without the birth defect. That’s approximately $100,000 annually with insurance covering only very basic needs. Think about if you had to spend that much more to support your family… there would be nothing left for family fun. Join us today in making a donation to support families with Spina Bifida.

Donate by Text

Donate to Sophie’s Voice Foundation (SVF) by texting “Sophie” and the amount you wish to donate to 41444. (Example – send text:sophie 25)

You’ll be connected to our online donation form – have your credit card handy.

Provided by MobileCause. Messaging & Data Rates may apply. All donations are billed to your credit card. Donations are collected for the benefit of Sophie’s Voice Foundation by MobileCause. Text HELP for help or STOP to stop to 41444.

Give a gift of fun and freedom:

  • Adaptable Sports Equipment = $50-$500
  • A night out for Mom and Dad = $25-$100
  • A Birthday party = $10-$100
  • Tickets to a game of your favorite Team = $25- $250
  • Family Day at the Movies = $20 – $60
  • A day at amusement park = $40 – $100
  • A day at the Arcade = $20 – $125
  • A day at the Zoo = $40 – $100
  • Family Dinner Out = $60 – $125

No gift is too small (or too large!) When you contribute your name will be entered to win a visit on-set of with Boris = Priceless!

Donate Online Today
“70% of the cases of Spina Bifida could be prevented by taking Folic acid. But the number of cases have gone through the roof lately, because of a lack of nutritional responsibility.”
Boris Kodjoe
“We are extremely excited and motivated to be a voice for those unheard, and to provide education about prevention and a possible cure for this most preventable birth defect.”
Nicole Ari Parker

Protecting Their Life Before It Begins

Mission and Background

Sophie’s Voice Foundation supports Global Health and Wellness Initiatives in multicultural communities.

Our Key Focus Areas are:

  • Prevention of Neural tube birth defects through folic acid fortification and supplementation
  • Broadening access to medical care and supplies to families in developing countries.
  • Delivering integrated health and wellness programs and content to multicultural communities.

Sophie’s Voice Foundation was founded in 2008 by actors Boris Kodjoe and Nicole Ari Parker in honor of their daughter Sophie who was diagnosed with Spina Bifida at birth. By dedicating themselves to a healthy lifestyle they found ways to address not only their daughters mental, physical and medical needs but also the needs of their entire family. Boris and Nicole have committed their resources and celebrity to educating multicultural communities worldwide on the importance of families working together to build healthy lifestyles one day at a time.

In December 2011, SVF established The Center for Spina Bifida Research, Prevention and Policy (CSB) at Emory University in Atlanta. Children’s Healthcare of Atlanta, Emory School of Medicine and the Rollins School of Public Health at Emory are also founding partners for this center, which seeks to provide national and international leadership in healthcare for individuals with spina bifida. CSB initiatives include the total global prevention of folic acid-preventable spina bifida and the transition for children from pediatric healthcare into accessible adult healthcare.
Nicole and Boris are extremely excited and motivated to be a voice for those unheard, and to provide education about prevention and a possible cure for this most preventable birth defect.

Actors Boris Kodjoe and his wife Nicole Ari Parker know first-hand about spina bifida and how it affects a child and family dynamics because their daughter, Sophie, was born with spina bifida.
They founded Sophie’s Voice Foundation (SVF) to further research that may offer viable solutions for better healthcare for children and adults living with spina bifida, to promote its prevention and to improve the quality of life for those living with spina bifida.

Spina bifida is a birth defect which can affect a child’s ability to walk and to control its bladder and bowel functions, and also affect its brain.

Please make a donation today to support this important work.

National Advocacy

Sophie’s Voice Foundation met with several offices of the Obama Administration, including Health Reform, the Secretary of Health and Human Services, Public Liaison, Secretary of Commerce and the CDC.

SVF advocates for children and adults with spina bifida and proposed a $200 million annual budget allocation to be given to CDC for worldwide birth defects initiatives and programs.

Family Support

The SVF helps Spina Bifida Families by providing medical, physical, and emotional support where needed. We are a community of people who come together to talk and listen, educate and learn, and find solutions to everyday issues.

Prevention and Education

Research has shown that 400 mcg of folic acid taken daily prior to conception and in the first three months of pregnancy can reduce the risk of having a baby with Spina Bifida by as much as 70%. The SVF organizes tours across America’s High Schools and Colleges to educate young girls about their responsibility to add folic acid to their diet.

Mobile Giving

Donate to Sophie’s Voice Foundation (SVF) by texting Sophie and the amount you wish to donate to 41444.

Make a donation to Sophie’s Voice Foundation today! With your financial support, you add your voice to help raise public awareness of spina bifida and its prevention – and you are helping to prevent needless birth incidences of a preventable birth defect.

Research and Prevention

The Rollins School of Public Health at Emory University (RSPH), Sophie’s Voice Foundation (SVF), and Emory University School of Medicine Department of Pediatrics announced today the establishment of The Center for Spina Bifida Research, Prevention and Policy (CSB). The primary goal of the Center will be the total, global prevention of folic-acid preventable spina bifida over the next 10 years. The Center will also create programs to help advance the quality of life for individuals living with spina bifida, including individuals transitioning from pediatric to adult care.

Help Us Make a Difference

Currently, SOPHIE’S VOICE FOUNDATION is planning and hosting fundraisers across the nation to provide $2 million seed funding for a national The Center for Spina Bifida Research, Prevention and Policy.

Make a donation today to help us reach our goal to advance the care and quality of life for children and adults living with spina bifida!

If you would like to contact Sophie’s Voice Foundation for more information about our programs or initiatives for the spina bifida community, the following is our contact information:

Sophie’s Voice Foundation

544 Park St
Montclair NJ, 07043
Telephone: (651) 335-3988